Maybe I have a skewed view of how life really was now that it's been almost a year since I lost my son, but I know our three years, though precious and amazing, we're not easy. We had long hospital stays, g-tube feeds, medications, countless appointments, therapies, specialists, emergencies, messes, and very little sleep. But … Continue reading Practicing patience
https://m.youtube.com/watch?v=ok4SRFbxALQ This song is for the lovers of the grieving mothers. We appreciate you. Spouses, partners, friends, parents, siblings, supporters. It takes an immense amount of strength to offer love, words, tears, silence. You are strong enough. And we love you for it.
I received some interesting advice recently. Now, as someone who has a very loving, caring, endearing, but sometimes invasive collection of people surrounding her, advice comes frequent and often uninvited. However, this piece of advice was somewhat sought. A friend invited me to join her at a church fundraiser where a group of individuals offered … Continue reading Setting boundaries
Twelve hour days, working lunches, deadlines, perfection. These are my concerns as I learn the complexities of a new profession. Fevers, ER visits, chemotherapy, organ donors. Those were my concerns a year ago as my son battled liver cancer in his final weeks of life. It's amazing how my concerns have changed in just twelve … Continue reading In time
I want the director's cut, limited release, bonus footage, double-disc DVD so on days like this I can just hit eject, insert disc two, and get an alternate ending. In my alternate ending, I'm raising a healthy, vibrant and cheerful four year old. We are busy with everyday life and our hectic schedule is our … Continue reading Alternate ending
I've heard a lot of people reference their younger years over the past couple weeks and say that if they only knew then what they know now, how differently they would have lived. I also remember several people saying to me during some of my toughest days when my son was sick, or those … Continue reading What I’d tell my younger self
"Laughed as my body she lifted Know this child will be gifted With love, with patience and with faith She'll make her way" -Natalie Merchant https://m.youtube.com/watch?v=6zpYFAzhAZY Today's song is dedicated to all of Heaven and Earth's special children. Those of you who were born with bodies that could not sustain life through adulthood. Those of … Continue reading Lyrics to love: 2.14.16
Trying to describe a mother's love to a woman who has yet to parent is like trying to describe Heaven to someone still living. Even stating those words makes me feel like I am expressing a concept so far beyond my reach and putting myself in a category where I don't deserve to exist. But … Continue reading A mother’s love
"Every time when I look in the mirror All these lines on my face getting clearer The past is gone" -Aerosmith https://m.youtube.com/watch?v=qzTZ76vhnKk Today's song is for those of us who woke up one day and realized we've aged decades in a matter of months. For those of us who, though we may have been dealt … Continue reading Lyrics to love: 2.11.16
For more than three years I was a stay-at-home mom, caring for a critically ill child, working part-time from a home office and attending OT, PT and pediatrician appointments. Our little family made every attempt to stay safe by avoiding crowds, practicing healthy habits and germaphobic rituals, and ensuring we never attended events where there … Continue reading When the bubble pops
Parenting Angels 